The Hypertophic Cardiomyopathy Research Foundation

About Us

Approximately 1 in every 500 people has Hypertrophic Cardiomyopathy causing some, including athletes, to die suddenly. Yet most people are unaware of this inherited serious heart disease and its potentially catastrophic effects.

The Hypertrophic Cardiomyopathy Research Foundation was started by an ex-athlete, one of the five percent who survive a sudden cardiac arrest. It is a New York State Tax Exempt Corporation under section 501(a) of the IRS code. After accounting costs, all funds received are used for research. The HCM Research Foundation supporting New York University Medical Center has no staff expenses; all activities result from volunteer efforts.

An echo of HCM

An echocardiogram of a patient with obstructive hypertrophic cardiomyopathy, showing thinkened septum (short arrow) and systolic anterior motion of the mitral valve (long arrow).

Our Mission: We solicit contributions to fund HCM research at New York University Medical Center. Our work focuses on efforts to:

  • Reduce, prevent, and eventually eliminate the risk of sudden death from HCM.
  • Understand how HCM causes patient symptoms.
  • Find new treatments to relieve symptoms and improve patients' quality of life.
  • Identify individuals with HCM and those who are likely to develop it.

We would like to send you information: and updates from time to time, so please, Click here to register your name and address.

To support HCM research: Send check to:
P.O. Box 690
Rye, NY 10580

Pay Pal donation

Surgical treatement of HCM

The Resection-Plication-Release operation (RPR) for obstructive hypertrophic cardiomyopathy.
© 2012, D. Swistel
Surgical Myectomy for Hypertophic Cardiomyopathy in the 21st Century, the Evolution of the 'RPR' Repair:
Resection, Plication, and Release.
Swistel D, Balaram S
Progress in Cardiovascular Disease, 2012

More questions?
Click here to learn more about the symptoms of HCM
Click here to learn more about the diagnosis and treatment of HCM
Click here to read abstracts of research that HCMRF has helped to fund

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